Michigan pans/pandas alliance
To restore childhoods.
Children with PANS and PANDAS are suffering from debilitating symptoms, but many families are unable to access necessary treatment due to insurance coverage limitations.
What are we trying to do?
To advocate for legislation in Michigan that mandates insurance companies to cover doctor-recommended treatment for children with PANS and PANDAS, ensuring access to care for those in need.
1 in 200 Children are diagnosed with PANS/PANDAS*
The average age of onset is 4 - 10.
*These are estimates of lifetime prevalence. Based on U.S. research of OCD incidence and CDC 2013 national surveillance report of emergency hospitalizations of youth to age 21 with mental health issues related to OCD, Tourettes, & Acute Mood Disorders. (MMWR 2013;62(Suppl; May 15, 2013): 1-35. Percentage of cases based on 2018 PANDAS Network survey 1,400 families and multiple published clinical studies.
Legislative Resources
Support Michigan PANS/PANDAS Alliance in our cause to restore childhoods.
We've provided a sample letter you can copy and paste, personalize, and mail, email, or submit online when contacting your State Representative.
Use the official Michigan State House of Representatives website to locate and your local State House Representative.
Use the official Michigan State Senate website to locate and contact your State Senators.
We've provided a sample letter you can copy and paste, personalize, and mail, email, or submit online when contacting your State Representative.
Use this outline to help draft written testimony in support of Michigan legislation mandating insurance coverage for PANS/PANDAS patients requiring treatment.
Find email address for all of your State Senators here, organized by District.
An article in the Detroit News from June 20, 2024, discusses the need for insurance coverage of IVIG for those suffering from PANS/PANDAS.
Join Michigan Effort for PANS/PANDAS Insurance Coverage - the official Facebook Group where we discuss and coordinate our efforts to seek legislation.
Join Michigan PANDAS/PANS/Autoimmune Enceph/Great Lakes Group - more than 1,000 parents, family members, and patients seek advice and share stories.
What is the cost of not treating PANS/PANDAS promptly & appropriately? Hear from Susan Swedo, MD.
What is the cost of not treating PANS/PANDAS promptly & appropriately? Hear from Susan Swedo, MD.
What is the cost of not treating PANS/PANDAS promptly & appropriately? Hear from Susan Swedo, MD.